CHIN: Information and resources for Families, Adults and Professionals






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Thanks to this website address, thousands of individuals have found information, support services and assistance they need about a condition that affects approximately 40,000 babies each year in the United States alone.

Congenital Heart Disease is considered to be the most common birth defect worldwide, and is the leading cause of birth defect related deaths. Despite these statistics, there have been few organized international resources dedicated to meeting the needs of the families and individuals affected by CHD.

The Congenital Heart Information Network, a 501(c)3 organization created by the mother of a child with complex heart defects, provides reliable information, support services and resources to families of children with congenital defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. Additional services include financial assistance to families in crisis, funding for local affiliated support groups, and sponsorship of an international CHD Awareness Campaign. With the guidance of a medical Advisory Panel, we maintain a commitment  to providing resources that are accurate and reliable.

When we first went online in November,1996, I never could have imagined that our volunteers could reach so many people. But perhaps the most rewarding aspect of this experience has been the development of close personal relationships among our members and site visitors. Meeting in small groups throughout the globe, so many "online" friends are reaching out to one another, not only through the Internet, but also by meeting each other in person, joining local support groups and starting new ones, writing books, organizing events, and helping to promote awareness of CHD.

Our story reflects the courage, compassion, and commitment of one international community of "online" families and dedicated medical professionals, who have maximized the interactive capabilities of the Internet to educate, inform, and connect people with one another in a very positive way.

There is no formal funding as yet for the Congenital Heart Information Network, and we rely on membership, voluntary donations and unrestricted educational grants to cover our costs.

What you see within these pages represents the next step in our continuing effort to provide much needed services to members, site visitors, other organizations and local support groups. It is my sincere hope that by working together, we can continue to grow and evolve to meet the ever growing needs of the people we serve. 

I look forward to hearing your ideas, comments, and suggestions, and I am excited by the possibilities!

Mona Barmash
Congenital Heart Information Network

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CHD Awareness Day Photos
Revised Advisory Board listings

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