CHIN: Information and resources for Families, Adults and Professionals
 CHD Awareness Week

Community

Resources

Links

About

Home

What's New

Contact

Search

Congenital Heart Defect Awareness Week
February 7-14, 2011 

An international coalition of families, individuals, non-profit organizations, support groups, and health professionals participate in a campaign to increase public awareness of Congenital Heart Defects and Childhood Heart Disease.

CHD Week Volunteer Proclamations Participants Calendar  
Congenital Heart Defect Fact Sheet
  • Sometime during early pregnancy, a baby's heart may not form properly, resulting in structural abnormalities known as Congenital Heart Defects. In many cases the cause is unknown.
  • It is estimated that 40,000 babies with Congenital Heart Defects (CHD) are born in the United States each year.
  • Although some babies will be diagnosed at birth, newborns are not routinely screened for CHD. The consequences of a late diagnosis can have serious, lifelong implications.**
  • CHD is the most frequently occurring birth defect, and is the leading cause of birth-defect related deaths. Nearly 1,800 infants with CHD die each year as a result of congenital heart defects
  • Some CHDs may require visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures. Complex defects may require several surgeries and are never really "cured".
  • The majority of patients born with congenital heart defects are now adults****, yet many adults with CHD are not receiving adequate ongoing care from trained specialists.**

* NHLBI

**Report of the National Heart, Lung, and Blood Institute Working Group on Research in Adult Congenital Heart Disease, 2006

***Congenital Heart Surgeons Society


Top of Page
Main CHD Awareness Week Page

 

 Community Resources Links About