The following is a collection of carefully selected links for many
specific congenital heart defects and conditions. Before you begin your
search for information, please understand that the resources you find may
not accurately reflect your child's specific situation, especially when you
or your child have more than one defect or condition.
Many people find it helpful to have their physician give them a diagram
of their (child's) heart. A detailed diagram, along with a good
explanation by a member of your medical team, may be the best way for you to
understand how your (child's) heart works, and what may need to be done to
help the heart work better.
| Arrhythmias |
|
Information |
|
Indications
for Anticoagulation in Atrial Fibrillation |
| |
Atrial Fibrillation |
| |
Diagnosing Arrhythmia
|
| |
Explaining Arrhythmia |
| |
Glossary of Terms |
|
Patient
Education - NASPE (Information about specific types of
arrhythmia) |
| |
Directory
of Pediatric Electrophysiologists |
|
Radio
Frequency Ablation |
|
|
| |
Organizations |
|
Cardiac Arrhythmias
Research and Education Foundation, Inc. |
|
SADS Foundation |
|
Directory
of Pediatric Electrophysiologists |
|
|
| Absent Pulmonary Valve |
|
Information
and Diagrams |
| |
|
| Anomalous Origin of the Left Coronary Artery (ALCAPA) |
|
Information |
|
Description |
|
Diagram
and Information |
|
|
| Aortic Valve Stenosis |
|
Information |
|
Signs, Symptoms, Diagnosis, Treatments, Outcomes |
|
| Aortopulmonary Window |
|
Information |
|
Diagram
and brief description |
|
|
| Atrial Septal Defect (ASD) |
|
|
|
Information |
| |
Atrial
Septal Defect: Surgical and Transcatheter Management |
| |
Atrial Septal Defect (information, diagrams, treatment, flash
movies) |
| |
Diagram: Atrial Septal Defect Primum |
| |
Diagram: Atrial Septal Defect, Secundum |
| |
|
| Atrioventricular
Canal Defect (AVSD) |
|
Information |
| |
Diagram |
| |
Diagram:
Royal Children's Hospital |
|
Treatment:
Heart Center Encyclopedia |
|
|
| Barth Syndrome
|
|
Information and Support |
| |
Barth Syndrome Foundation |
|
|
| Bicuspid Aortic Valve |
|
Info/Diagrams |
| |
| Cardiomyopathy |
| |
Information |
| |
Facts About Cardiomyopathy
(NHLBI) |
|
Dilated
Cardiomyopathy |
|
Hypertrophic
Cardiomyopathy |
|
Idiopathic Cardiomyopathy |
|
Understanding
Pediatric Cardiomyopathy |
|
|
|
Organizations |
|
Hypertrophic Cardiomyopathy Association |
| |
The
Cardiomyopathy Association |
|
|
| Charge Syndrome
|
| |
Information and Support |
| |
CHARGE Syndrome
Foundation Inc. |
|
| Coarctation of the
Aorta (COA) |
| |
Information |
| |
Diagrams,
Diagnosis and Treatment: University of Michigan Congenital Heart
Center |
|
|
| Congenitally
Corrected Transposition of the Great Arteries (CCTGA/L-TGA) |
| |
Information |
| |
Diagrams
and Information: Mayo Clinic |
|
|
| Cor Triatrium |
|
Medical
Information |
|
| Cornelia de Lange Syndrome |
|
FAQ's |
|
| Criss Cross Heart |
|
Diagram
and Information |
|
| DiGeorge Syndrome |
|
Information |
|
What
is DiGeorge Syndrome? |
|
|
| Double Aortic Arch |
| |
Information |
| |
Vanderbilt Pediatric Interactive Digital Library |
|
|
| Double Inlet Left Ventricle |
|
Diagram
and Information |
|
| Down Syndrome
|
| |
Information |
|
Down Syndrome: Health
Issues |
| |
Health
Care Guidelines For Individuals With Down Syndrome |
|
|
| |
Support |
| |
Organizations
Worldwide |
|
National
Association for Down Syndrome (U.S.) |
|
|
| Ebstein's Anomaly |
| |
Information |
| |
Information
and Treatment: MayoClinic |
| |
Diagram
and Information: Heart Center Encyclopedia |
|
|
| Eisenmenger's
Syndrome |
| |
Information |
| |
Information
and Treatment: Mayo Clinic |
| |
|
| Endocardial Fibroelastosis |
|
Information |
|
What
is EFE? |
|
|
| Heart Murmurs
|
| |
Information |
| |
Heart Murmurs and Your Child |
|
What
is a Heart Murmur? |
|
|
| Hypertrophic
Cardiomyopathy |
| |
Information |
|
Hypertrophic
Cardiomyopathy |
| |
Support |
| |
Hypertrophic
Cardiomyopathy Association |
|
The
Cardiomyopathy Association |
|
|
| Hypoplastic Left
Heart Syndrome (HLHS) |
| |
Information |
| |
Diagrams,
Information and Treatment: University of Michigan Congenital Heart
Center |
|
Fontan:
University of Michigan Congenital Heart Center |
| |
.....Animated
Graphics of Surgical Procedures: Cincinnati Children's Hospital |
|
Fenestration closure:
University of Michigan Congenital Heart Center |
|
|
|
|
| |
Support |
| |
Online Support
Group: C.H.I.N. |
|
Left
Heart Matters |
|
|
| Hypoplastic Right Heart Syndrome |
|
Information |
|
Diagram |
|
|
|
Interrupted Aortic Arch |
|
Diagram
and treatment |
|
| Kawasaki Disease
|
|
| |
Information |
|
Causes,
symptoms, diagnosis and treatment: Lucille Packard Children's
Hospital |
| |
Kawasaki
Disease:
A
Parent's Guide |
|
|
|
Support |
| |
Kawasaki Disease
Foundation |
|
| Long QT Syndrome |
| |
Information |
|
Brief
overview: University of Chicago Children's Hospital |
|
Long
QT Syndrome |
|
|
| |
Support and Research |
|
Cardiac Arrhythmias
Research and Education Foundation, Inc. |
| |
SADS
Foundation (U.S.) |
| |
The
Canadian SADS Foundation |
|
| Marfan Syndrome |
| |
Information |
|
Cardiac
Concerns |
|
An Overview of
Related Disorders |
|
What
is the Marfan Syndrome? (AHA) |
|
|
|
Organizations |
| |
The Canadian Marfan Association |
|
Marfan
Association U.K. |
|
National Marfan Foundation
(U.S.) |
|
|
| Noonan Syndrome
|
| |
Information |
|
Fact
Sheet |
|
Booklet
(PDF File) |
|
|
|
Support |
| |
Noonan
Syndrome Support Group |
| |
|
| Patent Ductus
Arteriosus (PDA) |
| |
Patent
Ductus Arteriosus: A Parent's Guide |
| |
Diagram |
| |
|
| Patent Foramen Ovale |
|
Information and Diagram |
|
| Pulmonary Atresia |
|
Diagrams
and Treatment |
|
Pulmonary Stenosis
Diagnosis and Treatment |
| |
| Pulmonary
Hypertension |
| |
Information |
|
Diagnosis
and Treatment |
| |
What Is Pulmonary Hypertension? |
|
Consensus
statements: Pulmonary Hypertension Association |
|
Pulmonary
Hypertension: Medline Plus |
|
|
|
Organizations |
|
PHCentral |
| |
Pulmonary Hypertension Association (U.S.) |
|
Pulmonary
Hypertension Association (U.K.) |
| |
United
Patients Association for Pulmonary Hypertension |
|
|
| Rubenstein-Taybi
Syndrome |
| |
Information |
| |
Book For Families |
|
|
|
Support |
|
Rubenstein-Taybi |
|
RTS
Canada |
|
RTS Support Group (U.K.) |
|
|
| Shone Syndrome |
| |
Diagram |
| |
|
| Stroke |
| |
Organizations |
|
Pediatric Stroke Network |
| |
Children's Hemiplegia and Stroke
Association |
|
|
| Tetralogy of Fallot (TOF) |
| |
Information |
|
Diagram,
Diagnosis and Treatment |
| |
Diagram: TOF Repaired |
| |
|
| Total Anomalous
Pulmonary Venous Return (TAPVR) |
| |
Information |
| |
Diagram |
|
Explanation,
Diagnosis and Treatment |
|
|
|
Transposition of the Great Arteries (TGA) |
|
Arterial Switch operation |
|
|
|
Tricuspid Atresia |
|
Information,
Diagrams and Treatment |
|
|
| Truncus Arteriosus (TA) |
|
Information |
|
Diagrams,
Diagnosis and Treatment |
|
Surgical
Repair |
|
|
| Turner's Syndrome |
|
Information |
|
Clinical
Feature of TS |
|
Endocrinology and Turner's Syndrome |
|
FAQ |
|
|
|
Support |
|
The Turner's Syndrome Society of the United States |
|
Turner's
Syndrome Society (Canada) |
|
The
Magic Foundation |
|
| Transposition of the
Great Arteries (TGA, D-TGA) |
| |
Information |
| |
Diagrams,
Diagnosis and Treatment |
|
|
| Vascular Ring |
|
Diagram
and treatment |
| Ventricular Septal
Defect (VSD) |
| |
Information |
|
Diagrams,
Diagnosis and Treatment |
| |
|
| VCFS |
| |
Information |
|
Congenital Heart Information Network |
|
Frequently Asked
Questions about VCFS |
|
|
|
Support |
| |
Velo-Cardio-Facial
Syndrome Educational Foundation |
| |
|
| Williams Syndrome |
| |
Information |
| |
Medical Guidelines |
|
Support |
|
The Williams Syndrome
Foundation Home Page |
|
Williams Syndrome Association |
