What are you thankful for?
Page 2
What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
Please note that the following represent each family's individual experiences and beliefs. Every family is different, and the needs and feelings of the children involved will be unique. We encourage you to seek professional advice if you have concerns or questions with regard to these issues.
Responses to Family Room
What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
Knowing that every time my husband and I take our 10mos. old son for another heart cath. or surgery, it could be the last time we ever see his wonderful smile and brilliant eyes sparkle.
Nothing makes me happy about having child with a CHD. My son would be just as wonderful without it. I always tell him that he is beautiful and has a wonderful heart, not healthy, but wonderful just the same.I don't think any parent could truly find a reason to be happy that their child has a CHD. if their response was that it made them cherish their child all the more, my response to that would be,every parent should cherish every child they have and an illness shouldn't make a difference. My child could die during any of his hospital procedures. So what makes me happy about having a child with a CHD...if you can think of something please let me know.
M.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
My daughter just turned 3 and there used to be a lot that made me angry. Like why the doctors couldn't fix what was wrong with her. Now what makes me angry is when people say,"what's wrong with her?"
The things that make me happy are that I have had 3 years, and what a wonderful 3 years! Okay,it hasn't all been wonderful, but it is 2 1/2more years than they gave. When she says,"Love you mommy", that is what makes me the happiest.
A.A.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
What makes me angry about having a child with heart defects is that for his entire life, he must be treated as a person with heart disease. He will not be able to try out for all sports, and must go through stress tests before trying out for the ones the pediatric cardioligstconsiders safe. He will go through life answering questions of why he must watch what he does.There is also the scar that goes around his left side that will bring questions.
The other thing that makes me angry is to think I took excellent care of myself during pregnancy. Why did this have to happen to us? it makes me very upset to see other people not taking care of their bodies while pregnant.
We can not say anything makes us happy about having a child with CHD. The only thing it does,is make you understand how precious health is. We watch the foods we eat and get regular exercise.Had our son not been born with CHD, we would not be as strict as we are. We treasure every moment we have with him.
J.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with chd?
There are many things that I am angry about in regard to my son's heart problems,but one that we are dealing with now is SCHOOL!He has been told that he can no longer play baseball, basketball, etc. at school , and the coaches do nothing but have him stand on the sidelines and WATCH, and occasionally retrieve a ball! It makes me cry to watch him just stand there wanting so badly to join in (he is 12 year sold and loves sports so very much)
S.C.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
Today I received a letter in the mail from my 14 year old son Michael. The letter came from Camp Bon Coeur, a cardiacrehabillitative camp in Lafayette, LA. I don't know if I will ever find a reason for being happy that my son was born with CHD, but today I shed tears of joy knowing that my son has found a slice of happiness, being surrounded by other children who have the same scarred chests and scarred memories of what life has been like for them.
The anger, fear, and guilt that I carried around for so many years has faded. Sadness and uncertainty of the future still hang on.
D.W.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
I think what makes me the most angry, is never feeling confident about his condition. My son is three months old, and had acoarctation repair at three weeks, and it has already reoccurred. I am ready to not worry about it any more, but I am sure I never will get to that point.
I am happy that my child is doing as well as he is. He eats beautifully and came through surgery great. Looking at him you would never know he has a heart condition.
C.O.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
What makes me angry about having had a child with CHD, is there is not always a surgery for the child, and sometimes the time runs out for them. I have had 2 children die from CHD. A daughter at 21 days. A son at 26 years of age.
What makes me happy: the wonderful 26 years we had together and all of his accomplishments,despite his CHD. He lived life to its fullest and I was so proud of him
J.P.
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What makes you angry about having a child with CHD?
What makes you happy about having a child with CHD?
What makes me happy about having a child with a Congenital Heart Defect? The fact that I don't have to wait my turn in the doctor's office when I take my child in when he is obviously ill. We get preferential treatment!
What makes me sad? Knowing that my child may suddenly die unexpectedly, and not knowing when that moment will come ... it's called living in limbo.
B.H.
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| What makes you happy about having a child with CHD?
Only a parent of a child with chd could even begin to not think that this question is absurd, after all, what could possibly be good about a heart condition? In my case it's been an honor to be used by God and blessed by so many people as we live with my daughters condition. Being able to meet and pray with kids and families from Russia, Nigeria and the United States. Understanding that people all grieve and grow in different ways and need understanding and respect. My Dr's praying over my daughter. The support and help of my Church members and people we didn't even know, but still wanted to help.
However the greatest gift is watching the strongest human being I know live and grow, no matter what the odds or problems. My daughter makes me glad. Her presence is the greatest gift I could receive and that makes me very glad.
D.M.
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