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 A Warm Blanket


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A Warm Blanket

Please note that the following represent each family's individual experiences and beliefs. Every family is different, and the needs and feelings of the children involved will be unique. We encourage you to seek professional advice if you have concerns or questions with regard to these issues.

Responses to Family Room

I loved the "warm blanket" story, and it got me thinking of the many things that have been done to make my 2 year old with HLHS comfortable at the hospital.

The thing that sticks out the most was a nurse who took the time to hold him...as a baby...not a patient. I know the nurses are busy, but this particular nurse made a point of telling me how cute he was, and asked if she could please hold him. She spent about 5 minutes just cuddling, no procedures, and playing peek a boo with him and he loved it. This nurse took the time with all the kids she took care of to visit them when it wasn't time for vitals or some other nasty thing. She said that she just loved the kids and wanted them to not only think of her as someone who did something to them, but someone who could be fun too.

K.K.

A "warm blanket"...When I think of our son's surgery almost 3 years ago, the warmth that always comes to mind is from the faces of the people who were involved in our son's care. What comes to mind first and foremost is the team of nurses in ICU, and their willingness to ensure that our son was as precious to them as he is to our family.

Our son's surgery was scheduled for a Monday morning. Saturday he had a blue spell, and did not come out of it easily. After a few calls to our PC, it was decided to have him admitted to ICU.

Once we arrived, the team in ICU helped us to settle, and our son was given one of the new cribs to sleep in for the night. The problem being that he had never slept in a crib before - he was used to curling up with his Dad and I in bed.

I was given a parent room outside ICU. At about 10:00 P.M. I heard a little knock on the door, and there was one of the nurses with our son all bundled up and a big smile on his face. She motioned for me to come with her quietly. I was led to one of the isolation rooms in ICU, with all the curtains drawn and pillows blocking the bars of the bed. For the next two nights, this would be our family bed. Our son immediately curled up with me and fell asleep.

The morning of surgery I was able to wake up with my precious little boy beside me, knowing that policy and procedure had been put aside, and that the team in ICU had a "warm blanket" that could cover all of our family.

Thanks to the amazing ICU team! We will always cherish the the "warm blanket" you gave our family.

K.W.

My son had a rather humorous "warm blanket" prior to his fontan repair surgery at age 5. The respiratory therapist, who Brad had gotten to know quite well during the previous months in ICU, came to see him the morning of his surgery. Knowing the anxiety and tension Brad (and his dad and I) were feeling, she proceeded to draw funny faces on the bottom of his feet, commenting on how surprised the doctors and nurses in the OR would
be when they transferred him to the operating table. It got Brad to giggling in happy anticipation of their reactions! I would have loved to have seen their faces!! What a great send-off she gave us!

On a more serious note, I recall the time that his ICU nurse was holding him and singing to him "My Favorite Things" during a painful tetracyline treatment in his chest tubes to slow up a pleural effusion. We had been asked to leave during the procedure, but when we returned we found her hugging him and singing, with tears rolling down her cheeks. He was in good hands.

We have been very fortunate to have experienced many "warm blankets" during Brad's 18 years. His doctors and nurses have invented balloons out of surgical gloves, basketball games with urinals, even a "hit list" of procedures he hated, like IV's and removal of tape and bandages (which he squirted with a squirt gun to vent his frustrations!). There are many caring, dedicated health care professionals out there, and their support has not gone unnoticed or unappreciated! Despite the many painful surgeries and procedures Brad has endured, his most enduring memories of the hospital have been of the happy ones!
P.B.

I can't help but think of this story I was told as my 3 day old baby boy was in PICU with CHD.(Now he is almost 3 and facing another open heart surgery next spring). This is my own version and the author is unknown to me, but the story goes something like this (true or otherwise I'm not sure, but it offers support to mothers who desperately want to hold their infants in ICU's).

A preemie infant lay in his crib with all his tubes and connections, unable to be held. His mother sat beside his crib everyday wishing she could hold her baby boy. Wanting her baby to feel her touch and know he was loved. Because she was unable to hold and touch her baby boy, she prayed every single day that the angels would come wrap their arms around her baby boy to keep him warm and give him hugs; let him know he is loved. She prayed for this everyday, until the day came when she could hold and hug him herself.

As time went on, her baby boy was growing strong. Everytime it rained the boy would stop to "smell" the rain, and ask his mom if she could smell that. "Smell What?" the mother would ask. At such a young age the boy's vocabulary wasn't large enough to explain. Finally, one day when the boy was around the age of 5 yrs, he and his mother were walking down the sidewalk when it started to storm. The boy stopped in his tracks and asked his mother, "Do you smell that?". "Smell what? The rain?", she asked. He turned to his mother and said, " That is what is smells like when the angels come and put their arms around you to keep you safe and warm!!"

This is "a warm blanket" to me. It may be helpful to parents who can not hold their infants in their first days of life.

J.W.

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