Our son, Aidan, was born June 2005 with no complications. We had no idea he had heart defects. About 7 hours after he was born, he began to turn blue and the doctors heard a heart murmur. He was transferred over to Akron Children's Hospital where they did an echocardiogram to determine that he has six heart defects. Aidan has ASD, VSD, TGA, PS, Double Outlet Right Ventricle and a Hypoplastic Left Ventricle.

Due to the pulmonary stenosis and small left ventricle (and all other aspects taken into consideration), it was determined that a one ventricle repair would be Aidan's best option. He had a B-T Shunt put in to allow enough oxygenated blood to flow to his body. When he was five months old, he had the bi-directional Glenn surgery. He will have the last stage (Fontan) surgery when he is four or five years old.

Aidan also has reflux, though he is not actually spitting up anymore. He takes Pepcid to treat the reflux. He also has low muscle tone which we are working on improving.

Aidan's biggest hurdle right now seems to be his eating. He is eight months old and still being NG-tube fed most of his fluids. He is actually getting a G-tube in two weeks. He will eat off of a spoon and will drink a couple of ounces of thickened 27 calorie milk, but not nearly enough to not have the feeding tube. We're having trouble getting Aidan to take volume... of milk or solids. He seems to get tired or full very quickly.

As far as cardiology is concerned, Aidan is doing very well! We are very pleased with how well his heart surgery went, and what a difference it has made in him. We thank God for such wonderful doctors and friends that have helped Aidan through all of this!