Alex

Hi, my name is Heidi and I am the proud mother of Alex. Alex was born 6 weeks early, but was a strong 4.8 pounds. Alex's EKG showed that he suffered a heart attack in utero. As a result of this heart attack Alex sent out blood clots, 9 of which caused obstructions in his small intestine, and one which damaged the left ventricle starting at the apex and extending up. The damage in his ventricle, which is not as severe as hypoplastic left heart syndrome (HLHS), causes him to have congestive heart failure (CHF), hypertension, and the doctors suspect endocardial fibroelastosis. Alex has only had a catheterization to date, so far he is doing well using digoxin and Vasotec as treatment. If this story sounds familiar it is because my mother Sue is also a member of this group. She loves it so much I thought I would try it for myself.