Alexis Anne

Name Diagnosis Treatment Birthdate Updates

Alexis Anne

HLHS, Bi-Directional Glenn, Pre-Transplant

Alexis

Our daughter Alexis Anne was diagnosed with HLHS and Turner's Syndrome at 20 weeks gestation. We live in Colorado and arrived in Philadelphia in April of 2002 for her birth and Stage I Norwood Procedure. In May of 2002 we returned to Colorado.

Once again in September of 2002 we returned to Philadelphia for her Stage II Bi-Directional Glenn and Pulmonary Vein Repair. She had a very complicated post-operative period and is now waiting for a heart transplant here in Philadelphia. She has a website created just for her that we would be happy to share with anyone who is interested.

— Sarah and Shane, Alexis' Parents (Colorado (home), Philadelphia (temp))

This article was last updated on February 10, 2003

Born: April 16, 2002
Diagnosis: Hypoplastic Left Heart Syndrome, Pulmonary Vein Stenosis, Turner's Syndrome
Treatment: Norwood Procedure - 4/17/02; Pulmonary Vein Repair - 9/6/02; Bi-Directional Glenn - 9/6/02; Heart Transplant - ?

Name Diagnosis Treatment Birthdate Updates

To comment on a portrait or send a message to the author, please email portraits@tchin.org.
Be sure to identify the portrait so we can properly direct your message.

Portraits are a benefit of membership in the Congenital Heart Information Network.
Click here to find out how you can become a member!

Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.

CHAT	Become a Member	Adults with CHD	Advisory Panel
Family Room	Book Reviews	Cardiology Services	CHD Awareness Week
Online Support	Pins & Brochures	For Families	Financial Support
Memorial Garden	Resource Room	For Nurses	Help Wanted
Portrait Gallery	Support Groups	For Professionals	Our Volunteers




	Home \| What's New \| Contact \| Search

	Disclaimer: The contents of this site are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns. Created and maintained by Mona Barmash and Uwe Baemayr for The Congenital Heart Information Network. Exempt organization under Section 501(c)3 Copyright �1996 - 2008 C.H.I.N. all rights reserved TX4-390-685 Please read our Privacy Statement