CHIN: Information and resources for Families, Adults and Professionals

CHIN Community Portrait Gallery

 Name   Diagnosis   Treatment   Birthdate   Updates 
Community

Resources

Links

About

Home

What's New

Contact

Search
 

Ashley Nicole

PDA, ToF, Complete Repair w/VSD Closure, Pulmonary Artresia, Conduit Stenosis


Ashley

We always knew that our new baby girl, Ashley, would change our lives forever. We just didn't know how and what the impact would be. When Ashley made her debut into this world she was a few weeks early, but from what we were told, she was just perfect. When we saw our regular pediatrician at Ashley's two week checkup, she knew immediately that there was something wrong. Ashley was diagnosed with Patent Ductus Arteriosis, Tetralogy of Fallot, and Pulmonary Artresia. She was transferred to Children's Medical Center in Dallas to have a central shunt put in by Dr. Nikaidoh. She did very well following the surgery, but had a difficult time gaining weight. By the age 15 months, she had a cardiac catheterization and second surgery to have a RV to PA Shelhigh conduit placed and VSD repair. Overall, Ashley is doing well. She runs and plays and laughs and talks. Two is such a great age! She currently (at age 24 months) is having moderate conduit stenosis and is facing another catheterization and probable surgery within the next few months.

There have been many questions we have asked ourselves. How could this have happened to us? We had never really even known of anyone with a child with CHD. There were many days we didn't know if we could even hold our heads up. This is a club no one wants to be a part of. But in time, we have learned once again that each and every day is such a gift from God. The things that we thought were problems before dimmed in light of what was really important. We have the best Doctors in the world! Dr. Elizabeth Dickey, our pediatrician, Dr. Tracy Laird, our PC, and Dr. Nikaidoh and Dr. Leonard, our surgeons were truly hand picked by God not only to teach us, but to be a source of encouragement to us. I do not know how we would have gotten this far without each of them. We are so grateful to have our son, Ryan (heart healthy) and Ashley in our lives. They make us complete. God has taught us so much and given us so many miracles.

— Matt and Cheryl, Ashley's Parents and brother Ryan (Dallas, Texas)


This article was last updated on June 21, 2004

  • Born:  June 10, 2002
  • Diagnosis:  Tetralogy of Fallot with Pulmonary Artresia (ToF/PA), conduit stenosis, Patent Ductus Arteriosus (PDA)
  • Treatment:  PDA closure, Central shunt, VSD closure, RV to PA conduit, diagnostic catheterization.


 

To comment on a portrait or send a message to the author, please email portraits@tchin.org.
Be sure to identify the portrait so we can properly direct your message.

Portraits are a benefit of membership in the Congenital Heart Information Network.
Click here to find out how you can become a member!


Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
Become a Member

 Community Resources Links About