Presently I am 29 plus weeks pregnant with our fourth child, a little boy. At 17-1/2 weeks into my pregnancy, I went into my OB's office for a routine visit and ultrasound. The tech couldn't get a good look at the heart and so my doctor asked me to get a Level II Ultrasound done. A week later, the Level II indicated a problem with the heart and I was told they suspected the baby had HLHS. Three days later, a cardiologist confirmed the diagnosis and we began the emotional roller coaster ride we've been on ever since.

For the next several weeks, I spent a great deal of time on the internet researching HLHS, crying and wondering just how we were going to be able to handle this baby. Eleven weeks later, the idea has settled on us and we've made plans, but we are anticipating a rough road ahead. We have decided to travel to Philadelphia for delivery and for the baby's first surgery, the Norwood procedure. This will be done at the Children's Hospital of Philadelphia.