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Becky

Peripheral Pulmonary Artery Branch Stenosis, Secondary Pulmonary Hypertension


We found out about Bec's heart and lung defect when she was 10. Until then we were told that she had a VSD. I kept telling people that something was really wrong and then somebody finally listened.

Her primary diagnosis is peripheral pulmonary artery stenosis with secondary pulmonary hypertension. She has loads of other things going on in her young life too. She is blind and has lipomeningocoele.

However, I must say the most important thing is that she is alive and reasonably well

? Sharron, Becky's Mother (Sydney, Australia)


This article was last updated on March 2, 2002

  • Born:  October 18, 1986
  • Diagnosis:  Peripheral Pulmonary Artery Branch Stenosis, Secondary Pulmonary Hypertension; Blind, Craniostenosis, asthma, Lipomenogocoele, RSD
  • Treatment:  balloon angioplasty, (multiple) prednisone oral steroids, Lasix, plendil, awaiting transplant (heart lung)


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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