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Julie

Single Ventricle, Fontan Revision


Julie with her husbandJulie seemed healthy at birth, but we found out six months later that she had single ventricle, transposition of the great arteries, and pulmonary stenosis.

A Blalock-Taussig shunt at 18 months worked wonders for many years. But at age 12, Julie was beginning to tire easily. She was one of the first children to have a Fontan procedure in our area. A few days later a pacemaker was put in that paced "on demand" only if her rate got too low. Several months later, another open-heart surgery was done to repair a leak in the Fontan.

Again the procedure worked magically, and Julie was healthy all through high school and college. At age 22 she started to get bouts of atrial flutter. She underwent many cardioversions, tried lots of various drugs with varying degrees of success. An RF ablation helped for only a short time, and a second one helped for a year.

Finally, at age 28, Julie had a revision of the Fontan, and at the same time got a dual-chambered, smart pacemaker, which completely controls the heartbeat. In the year and a half since then she's had two cases of flutter, but both times it was easily corrected in a few minutes at the hospital by using the pacemaker. So, for now, everything seems under control.

Julie's heart problems have not been the major theme of her existence. Rather, she's led a very full life. She did great academically, and won many state and national math and computer competitions. She was always creative, for many years self-publishing a book every year and doing every kind of art and craft. She played cello in the acclaimed city youth symphony. She learned foreign languages easily, including French, Russian, German, and Esperanto. Her love of animals led to many small critters and culminated in "a chaos" of ferrets. Because of her concern for animals and the environment, she turned vegetarian in high school, and vegan a few years later, and maintains a web site to help other vegans. She volunteered for many years helping elderly women.

After getting a Ph.D. in mathematics, Julie works as a research mathematician in San Diego. She's married to a wonderful young man she met at grad school, who works in the same field. She's an extra-sweet person who knows how to enjoy life to the fullest.

Arlyn and Les, Julie's parents (Seattle, Washington, USA)


This article was last updated on April 12, 2001

  • Born:  August 24, 1971
  • Diagnosis:  Single Ventricle, TGA
  • Treatment:  Fontan Procedure, Pacemaker, RF Ablation, Fontan Revision


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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