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Karen

Tetralogy of Fallot


I was born in January 1958 in Houston, Texas. At 2 days of age, my pediatrician told my parents that he heard a heart murmur. I was also a "blue baby". I had my first catheterization at the age of 2. I was diagnosed with Tetralogy of Fallot. I then went to the doctor often for check ups as I continued to grow.

At the age of 8, we decided it was time for my surgery. I had a "complete repair" done in June, 1966 at Texas Children's Hospital. Dr. Denton Cooley was my surgeon. After recovering from this initial surgery, I went on to live a very normal life for many, many years. The only restriction I ever had was to just stop whatever I was doing when I got tired. (This worked great in P.E. class when I was always excused from running the dreaded mile) I went on to college, then worked full-time until I had my first of two children. They are now 16 and 10 and I have been married over 20 years.

The only time I remembered that I had a heart defect was when I would feel arrhythmias. This started to occur more and more often in 2001. In February 2001 I had a defibrillator implanted after an EP study was done. In May 2001, I had my AV node ablated and became pacemaker dependant. In June 2001, I had my pulmonary valve replaced at Texas Children's Hospital in Houston. Since the valve replacement, the size of my right ventricle has decreased markedly.

I continue to do well and try to live life to its fullest one day at a time. Prior to finding this Internet group, I had never met anyone else like me. C.H.I.N. has been such an incredible source of information, support and friendship. I don't know what I would do without it.....

— Karen (South Texas)


This article was last updated on December 17, 2003

  • Born:  January 29, 1958
  • Diagnosis:  Tetralogy of Fallot (TOF)
  • Treatment:  TOF-Complete repair-6/66; AICD Implantation-2/01; A/V node ablated, Pacemaker activated-5/01; Pulmonary valve replacement 6/01


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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