Layton (2009)

After the birth of our second son, Layton, the doctors noticed he had a loud murmur. After having an echo, it was determined that he had TOF. He was allowed to come home with us and wait for his surgery. At 10 weeks, he had a complete repair, which went well–he was in the PICU for only 5 days, on the floor for 3, and then home! He had a few minor setbacks during his recovery, but overall did great! While it was the most difficult thing we have ever endured, looking back, we can see that his surgery and recovery went relatively well.

Layton is now 4, and is the most spirited and active of our three boys. He doesn't know the meaning of the word 'fear', which means that we, as his parents, sometimes do! He is feisty and energetic, and a true joy (and ALL boy!) He will face a catheterization in the next few years to balloon his pulmonary arteries, and most likely place a stent, due to pretty severe stenosis of his peripheral arteries. He will have a valve replacement when it is determined that the regurgitation from his pulmonary valve (which essentially doesn't work) is affecting his physical activity and/or heart function.

October 2009 Update

Layton had his annual cardiology appointment in August, and things look pretty good. They want him to come back in March, to keep an eye on things, as the time is nearing for him to need either a stent or some sort of intervention regarding his pulmonary stenosis. His pulmonary valve will be replaced at some point in the next couple years. He is doing fantastic, and is still extremely active–always keeping us on our toes with his daredevil attitude!