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Merci Skyler

CCTGV, VSD (x2), Pulmonary Stenosis (no repair to date)


I am going to tell the amazing story of my beautiful baby girl. Merci's struggle started at nineteen weeks into my pregnancy. I went in for a routine sonogram and they found that I was fifty percent thinned and a fingertip dilated was told if i carried her to twenty-eight weeks it would be a miracle and she might have a chance. I carried her to thirty-eight weeks and two days!! Thank you Lord for your blessings on my sweet baby girl!!

I had perfectly normal delivery and Merci looked great. She scored a nine on Apgar. All that came to an end an hour before discharge! The doctor told us he heard a murmur and they needed to do an echo. He didn't suspect any major problems. Merci never returned to that hospital room. She was put in NICU and they started prostaglandins. She was kept there for three days until a nearby hospital could get her in. We were sent to LeBonheur in Memphis, TN. They did an immediate echo to get a little more insight and she was confirmed to have CCTGV, etc... The next day they did a cath and reconfirmed that the diagnosis was correct. They were all amazed at how incredibly healthy Merci was and released her four hours after cath. because they wanted to let her grow as much as possible before surgery.

Merci is now seven months old and still just growing!!! She weighed 5 lbs.14 oz. at birth and she now weighs 17 lbs! How truly blessed she is!!! The doctors are ready to get surgery talk under way and we have decided to go to Cleveland OH to the Cleveland Clinic. We will hopefully have Dr. Mee for a surgeon.

We thank God everyday for his miracles!!

— Amanda, Merci's mother (Nettleton, MS)


This article was last updated on September 13, 2005

  • Born:  February 3, 2005
  • Diagnosis:  Congenitally Corrected Transposition of the Great Ventricles (CCTGV), two Ventricular Septal Defects (VSD), and Pulmonary Stenosis
  • Treatment:  No repair to date


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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