Noah Jay

Noah was born on November 27, 2008 with Hypoplastic Left Heart Syndrome. We found out at our 20-week ultrasound at the birth center that our baby would have a heart condition and were given several different options. We knew instantly that we wanted to be proactive and go for the three-stage surgery once he was born.

Noah was born screaming and crying and showed us the first of his stubborn personality! He was doing so well that the doctors kept him at the hospital overnight. The next morning, they discharged him (and me!) and we both headed over, by ambulance, to Phoenix Children's Hospital.

Noah had the first of his three surgeries at 5 days old. He sailed through it like a champ!! We were in the hospital for only three weeks. During that time, despite all of the nurses telling us it wouldn't happen, we learned how to breastfeed and he went home without any feeding tubes!

At four months old, we took him back in and handed him over to his Dr. for his Bi-Directional Glenn. I think that this was harder on us as parents, because we had had time to bond and get to know how precious our new baby boy was.

Again, Noah sailed through and was out in a week.

Since then, Noah has grown into a healthy, happy (most of the time:-) two year old. He is ornery and stubborn and I wouldn't change those traits for the world!!

We expect his Fontan to be sometime in the fall or spring.