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Sarah Kate

HLHS


We found out that Sarah Kate had a heart defect in June 2000 via ultrasound. The doctors at Eggleston did not give us a very good prognosis. We then went to St. Louis Children's Hospital for further care, since we are from Missouri. She was born at Barnes Hospital on November 8, 2000. Sarah Kate had a Blalock-Taussig shunt placed on November 13 and did extremely well. We were discharged just 13 days after her birth. She grew and thrived remarkably. Her four siblings, ages 12 to 2 at the time adored her. She rarely got put down and had a ready smile for everyone who came into sight, even strangers. On May 8, 2001 we went to St. Louis Children's Hospital for a diagnostic cardiac catheterization in preparation for the Glenn the next day and something went dreadfully wrong. The doctors are still at a loss as to what exactly happened.

Sarah Kate is now an angel, watching over our family and her new little brother, Thad. She is buried with her uncle on our property just a few hundred yards from our home. We visit her often and talk about her daily. Her life made a tremendous impact on our family and we are thankful for the few short months we were allowed to be in her presence. She is sadly missed by Mick, Hunter, MaryAnna, Hannah, Mom and Dad.

— Patty and Will, Sarah Kate's parents (Southeast Missouri)


This article was last updated on October 2, 2002

  • Born:  November 8, 2000
  • Diagnosis:  Hypoplastic Left Heart Syndrome (HLHS), Total Anomalous Pulmonary Venous Return (TAPVR), Transposition of the Great Arteries (TGA), Pulmonary Stenosis, Situs Inversus, Dextrocardia, Atrial Septal Defect (ASD), Coarctation of the Aorta
  • Treatment:  Blalock-Taussig (stage I Norwood) 11/13/00; Cardiac Cath in preparation for Glenn (stage II Norwood)5/8/01


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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