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 C.H.I.N. Affiliated
 
Support Groups

United States

 

Connecticut
        Congenital Heart Defect Awareness, Inc
        1996 Hartford Tpk,
        North Haven, CT 06473
        203-234-1371
        Contact: Jeanne Imperati

Florida
        Angel's Pediatric Heart House
        151 N Nob Hill Rd. Suite 139
        Plantation,  FL 33324
        Contact: Sonia Perez
        Phone: 954-318-2020

Illinois
        T.O.U.C.H. 
        515 NE Glen Oak Ave. Suite 202
        Peoria, IL 61603
        Contact: Gail Eaton
        Phone: 309-655-2650

New York
       
Children's Heart Fund
       
One Gustave Levy Place
       
PO Box 1201
       
New York, NY 10029
       
Contact: Suzanne Zimmerer
       
Phone: 212-241-8668

Ohio
        C.H.I.N., Ohio
        Contact: AnneMarie Sarvis
        Email: anne@tchin.org
        Phone: 330-665-1113

        Healing Hearts
        Akron, OH
        Contact: Katie Fleming
        Email: flemings249@aol.com
        Phone: 330-543-4325

Pennsylvania
        C.H.I.N., Philadelphia
        Includes Philly and surrounding counties, Central through 
        South New Jersey and Delaware
        Contact: Lisa Rodebaugh

Tennessee
        Saving Little Hearts
        Knoxville, TN
        Email: info@savinglittlehearts.com

Texas
        Heart to Heart
        PO Box 720072
        Dallas, TX 75372
        Phone: 888-475-2787
        Contact: Autumn Rose Reo

Australia

        Heart Kids Victoria Inc.
        PO Box 5108
        Clayton
        VIC 3168
        Contact: heartkids@hotkey.net.au

Canada

        Children's Heart Network
         #4 3821A Cedar Hill Cross Road
         Victoria British Columbia CANADA V8P 2M6
         Phone: 250-598-2542
         Program & Family Resource Coordinator: Colleen Corder
         e-mail: chn@childrensheartnetwork.org

France

        L'Association Nationale des Cardiaques Congenitaux
        email: contact@ancc.asso.fr

Germany

        IDHK - Interessengemeinschaft Das herzkranke Kind
        Steinenhausenstrasse 37
        D 70193 Stuttgart
        Telephone: 07 11 / 6 36 60 19
        email: roennebeck@idhk.de


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United States                                                                                      

Alabama
         
Mended Little Hearts of Ft. Benning and the Tri-City Area
902 31st Street
          Phenix City, AL 36867
Phone: 321-507-6666
          Contact: Chastin Schmeichel
Arizona

         
Mended Little Hearts of Phoenix
          Tucson, AZ
Contact: Vanessa West
Phone: 520-406-5655
Email: TucsonAz@mendedlittlehearts.org
         
         Mended Little Hearts Tucson
          Phone: 520-406-5655
California
California Heart Connection
56 Cedarlake
Irvine, CA 92614
Contact: Debbie Hilton-Kamm
Phone: 949-653-6421

          CHIFund
         
PO Box 28757
         
San Diego, CA
         
Contact: Wendy Robinson

          Mended Little Hearts Sacramento 
         
Phone: 916-698-1680
         
Contact: Shannon Tucker

Colorado
Cardiac Kids/Association of Volunteers
1056 East 19th Avenue
Box 465
Denver, CO 80218-1088
Phone: (720) 777-1234
e-mail:CardiacKids@tchden.org

Connecticut
Congenital Heart Defect Awareness, Inc
Phone: 203-234-1371
Email: info@chdawareness.org
 
Little Hearts, Inc.
Contact: Lenore Cameron
Phone: 866.435.4673
 
Delaware
C.H.I.N., Philadelphia
Includes Philly and surrounding 
counties, Central through 
South New Jersey and Delaware  
Contact: Lisa Rodebaugh
Florida
Angel's Pediatric Heart House       
151 N Nob Hill Rd. Suite 139
Plantation,  FL 33324 FL 33355
Contact: Sonia Perez
Phone: 954-318-2020
 
        Pediatric Heart Foundation (South Florida)
        PO Box 222535
        West Palm Beach, FL 33422
        Email: info@pediatricheartfoundation.org
        Phone: 561-236-6636
        Mended Little Hearts of Volusia County

PO Box 291464

Port Orange, FL 32129-1464

Email: heartmom11909@cfl.rr.com

Phone:386-681-7790

           Broken Hearts of the Big Bend
           Tallahassee, Florida
           Contact: Karen Thurston Chavez
           Phone: (850) 443-2984
           E-mail: brokenheartsinfo@brokenheartsofthebigbend.org

Georgia
Kids at Heart
Atlanta, Georgia
Contact: Shannon Chapman
Phone: 404.785.1822
          Contact: shannon.chapman@choa.org:
 
Hawaii
Kardiac Kids
c/o Kapi'olani Medical Center for Women and Children
1319 Punahou Street
Honolulu, HI 96826
808-983-6169 
 
Illinois

T.O.U.C.H. 
515 NE Glen Oak Ave. Suite 202      
Peoria, IL 61603
Contact: Gail Eaton
Phone: 309-655-3453

 

     
Indiana
It's My Heart Indianapolis
1775 St. James Place, Suite 130
Houston, TX 77056
Phone: 888 HEART-07
Contact: indianapolis@itsmyheart.org

Iowa
Heart Friends
UIHC Pediatric Cardiology
Iowa City, IA
Contact: Trudy Pierick
Waterloo Chapter
Contact: Elly Steffen 
Kentucky
          Kerrington's Heart
          P.O. Box 911074
          Lexington, KY 40591
Phone: (859) 509-9857
          Email: info@KerringtonsHeart.org
Louisiana
It's My Heart Southwest Louisiana
Phone: (404) 372-7267
Contact: swla@itsmyheart.org
Maine
          Stronghearts
PO Box 177
          Perry, ME 04667
Phone: 207-853-2774
          Email: stronghearts@roadrunner.com

          Precious Hearts
          22 Bramhall St.
          Portland, ME 04102
          Contact: Pam Schlichting, BSN, RN
          Phone: (207)662-2273

          It's My Heart New England Chapter
          PO Box 111
          Danvers, MA 01923
          Phone: 351-201-1533
          Email: ne@itsmyheart.org 

Massachusetts
Adults with Congenital Heart Disease Support Group
Meets first Monday of each month
Children's Hospital Medical Center
Contact: Dr. Jonas Bromberg
Phone: 617-332-6028
e-mail: jonas_bromberg@hms.harvard.edu

          It's My Heart Boston Chapter
          P.O. Box 111
          Danvers, MA 01923
          Contact: Isabelle Ouimette 
          (351)201-1533

          Friends With Heart
          PO Box 443
          Shrewsbury, MA 01545
          Contact: Dawn King
          Phone: (508)842-1636

Michigan

Hearts of Hope
Contact: Jill Teats / Colleen Schomaker

It's My Heart Metro Detroit Chapter
P.O. Box 1636
Royal Oak, MI 48073-1636
Contact: Mary Brown
(248) 229-7369

          It's My Heart Michiana Chapter
          P.O. Box 202
          Wakarusa, IN 46573
          Contact: Wendy Keeling
          (574) 606-8989
         
Minnesota
Parents For Heart of Minnesota, Inc.
Attention: 32-P190
2525 Chicago Avenue South
Minneapolis, Minneosta 55404
Contact: Gina Werner

          Lasting Imprint
          PO Box 261
          Mankato, MN 56002
         Contact: Andrea Heidelberger
         Phone: 507-779-2489

Missouri

Heart to Heart - St. Louis
St. Louis Children's Hospital
Social Service Department
One Children's Place
St. Louis, MO 63110
Contact: Elaine Wear and Nan Winters
Phone: 314-577-5600

Nebraska
The Midwest Heart Connection
PO Box 45618
          Omaha, NE 68145
Megan Connelly
e-mail: ed@midwestheartconnection.com
Phone: 402-203-0202
 
Nevada
Children's Heart Foundation
3006 S. Maryland Parkway, Suite 690
Las Vegas, NV 89109
Contact: Lyn Acebo
 
 
New Jersey
C.H.I.N., Philadelphia
Includes Philly and surrounding 
counties, Central through 
South New Jersey and Delaware  
Contact: Lisa Rodebaugh

          CHD Coalition
          45 Carey Avenue Suite 106
          Butler, NJ 07405
          Contact: Kim Shadek
          (973) 291-4676

New York
Children's Heart Fund
One Gustave Levy Place
PO Box 1201
New York, NY 10029
Contact: childrensheartfund@yahoo.com
Phone: 212-241-7456

Hope for Hearts, Inc.
Children's Medical Center
Stony Brook University Hospital
Stony Brook, NY 11790-8111
Contact : Rose Weiss
Phone: 631-499-4476

Mend-A-Heart Support Group
New York, NY
Contact: Dana Connely
Phone: 212-263-5940

North Carolina
          Levine Cardiac Kids
          1800 Camden Road
          Suite 107, #57
          Charlotte, NC 28203
          Phone: 704-726-3493
          Contact: l.mckenzie@levinecardiackids.com

Ohio

C.H.I.N., Ohio
Contact: AnneMarie Sarvis            
Email: anne@tchin.org                
Phone: 330-665-1113

Hopeful Hearts for Children
Cincinnati, OH
Contact: Julie Balzano
Email:  jbalzano@fuse.net 

It's My Heart Cleveland
P.O. Box 225
Girard, OH 44420
Contact: Teri Knight
(330) 530-2534

It's My Heart Columbus
P.O. Box 107
Delaware, OH 43015
Contact: Nicole Turturice
(740) 363-6978

Oregon

           It's My Heart Southern Oregon Chapter 
          Phone: (404) 372-7267
          Contact: so@itsmyheart.org

          Mended Little Hearts of Greater Portland
          Contact: Pam Camit
          503-860-8452

 Pennsylvania

C.H.I.N., Philladelphia
 Includes Philly and surrounding 
 counties, Central through 
 South New Jersey and Delaware  
 Contact: Lisa Rodebaugh

Heart to Heart
Children's Hospital of Pittsburgh, Oakland Campus
Meetings on the 2nd Thursday of every month
Phone: 412-692-5546

Hershey Hearts
PO Box 163
Hershey, Pennsylvania 17033-0163
Email Contact: info@hersheyhearts.org

It's My Heart Metro Philly
P.O. Box 130
Stratford, NJ 08084
Contact: Krissy Shafer
(856) 504-6984

Rhode Island

            Helping Hands, Healing Hearts
            P.O. Box 2113
            Pawtucket, RI 02861

            Contact: Kelli Carlson

           The Rhode Island Association for Cardiac Children
            Phone: 401-353-3966
            Contact: riacc@cardiacchildren.org

South Carolina

Palmetto Hearts
PO Box 2265
Greer, SC 29652
Phone: 888-580-3052
Contact: Sara Wallace

Texas

Heart to Heart
P.O. Box 595
Colleyville, TX 76034-0595
Phone: 888-475-2787
Contact: Autumn Rose Reo
     

Milagros (Miracles)
Dell Children�s Medical Center of Austin
4900 Mueller Blvd
Austin, Texas 78723
Phone number: (512) 650-3475
Contact: mymilagrosaustin@gmail.com

 It's My Heart Austin Chapter
Phone: 404 372-7267
Contact: austin@itsmyheart.org

It's My Heart Fort Worth
P.O. Box 12313
Fort Worth, TX 76110
Contact: Miranda Tamez(817) 275-0750

It's My Heart National & Houston Chapter
19728 Saums Road
PMB #137
Houston, TX 77084
Contact: Corrie Stassen
(713) 334-4244

Amazing Little Hearts
7801 Comanche Way
McKinney, TX 75070
Phone: 972-529-9951

 

Utah

              Intermountain Healing Hearts
              PO Box 581306
              Salt Lake City, UT 84158-1306
              Email:
info@intermountainhealinghearts.org
             
Phone: (800) 397-1174

Virginia

Tender Hearts
P.O. Box 2776,
Merrifield, Virginia 22116-2776
Phone: 703-204-6563
Contact: info@Tender-Hearts.net

Washington
          Heart to Heart CHD Support Group
          2700 Northup Way 
          Bellevue WA 98004
          Contact: Josephine Young, MD
Phone: 425-827-4600

          It's My Heart Greater Seattle
          P.O. Box 1192
          Summer, WA 98390
          Contact: Carla Baysinger
          (253) 269-2240 

Wisconsin

Mended Little Latino Hearts
2026 Dodge St.
Madison, WI 53713
Phone: (608) 512-5227
Contact: latinolittlehearts@yahoo.com

Kids With Heart
1578 Careful Drive
Green Bay, WI 54304
Phone/Fax - 920-498-0058


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Australia
Heart Kids Victoria Inc.
C/o Cardiology Department
The Royal Children�s Hospital
Flemington Rd
PARKVILLE VIC 3052
Contact: heartkids@heartkids.org.au
Phone: 03 9513 9030
 
PO Box 364
North Adelaide
South Australia 5006
Tel: 0406165111

Heart Kids ACT, Inc.
PO Box 1041
Woden, ACT
Australia 2606
 
Heart Kids QLD
P.O. Box 3017
Norman Park,
Brisbane, Qld. 4170
Contact: Lyn Chappell

Heart Kids WA
PO Box 1554 West Perth
Telephone: (08) 9340 7996
e-mail: heartkidswa@heartkidswa.org.au

          Heartkids NSW, Inc
          26/10J Hilltop Rd
          Merrylands NSW 2160 
          Phone: (02) 9294 0800
          email: mail@heartkids.org.au

 
SADS Australia
Information and Support about the Genetic Heart Disorder
called the Long QT Syndrome
Contact: Julie Foley


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Brazil
Heart Circle of Pernambuco
          Email: ssmattos@cardiol.br
 

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Belgium
Nos Enfants Cardiaques
email: nos.enfants.cardiaques@skynet.be
 
Ons Hartekind
email: pub00323@innet.be

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Canada
 
Heart Defects Society of Windsor
2912 Lloyd George Blvd.
Windsor, Ontario
N8T 2V1
Email: support@heart-defects-society.org
Phone: 519-551-5461
 
CHAIN
1688 Boul Lorrain Gatineau
Quebec, Canada J8R-3G1
Phone: 819-643-9663
Children's Heart Society
Box 52088, Garneau Postal Outlet
Edmonton, Alberta
T6G 2T5
Phone: 403-454-7665
e-mail: ckstump@telus.net

Children's Heart Network
#4 3821A Cedar Hill Cross Road
Victoria British Columbia CANADA V8P 2M6
Phone: 250-598-2542
Program Coordinator: Colleen Corder
e-mail: chn@childrensheartnetwork.org                

The Heart Of A Child
Support for parents with children who have CHD
1070 Windsor Ave.
Windsor Ontario
N9A 1K4
Phone: (519) 971-0760

Circle of Hearts 
Winnipeg, CA
Contact: circle_of_hearts_vchc@hotmail.com

Canadian Congenital Heart Alliance
Contact: info@cchaonline.ca

kidPACES
Parental Advocates for Cardiac Education and Support for Kids
 The Hospital for Sick Children
 555 University Avenue
 Toronto, Ontario
 Canada
 Contact: kid.paces@sickkids.ca

Heart Beats Children�s Society of Calgary
Calgary, Alberta
Contact: Patty Wiebe

Heart Defects Society of Windsor and Essex County
Contact:info@HeartDefectsSociety.org


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China

           Children's Heart Foundation: Hong Kong
           E-mail: chf@childheart.org.hk 


France

           Heart and Coeur
           France

L'Association Nationale des Cardiaques Congenitaux
email: contact@ancc.asso.fr

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Germany

IDHK - Interessengemeinschaft Das herzkranke Kind
Steinenhausenstrasse 37
D 70193 Stuttgart
Telephone: 07 11 / 6 36 60 19
email: roennebeck@idhk.de

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Ireland

Heart Children
The Carmichael Centre
North Brunswick Street
Dublin 7, Ireland
Email: heartchildren@eircom.net


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Italy
          Associazione Bambino Cardiopatico (ABC Parma)
          Piazzale Matteotti, 9
          43100 Parma
          Email: info@abcparma.it

          Associazione Italiana Amici della Scimitarra  


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Netherlands

Hartenark
Prof. Bronkhorstlaan 2
3723 MB BILTHOVEN
The Netherlands
31-30-2290244
Contact : Karin Bus


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New Zealand
@Heart Inc
        Level 1, 60 Grafton Road

Grafton, Auckland 1010

Contact: lorraine.warshaw@heartnz.org.nz
 
Adults with Congenital Heart Conditions
Contact : Shelly


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Scotland
Bravehearts
26 Fernbank
Ladywell, Livingston
Scotland
EH54 6DT
e-mail: braveheart@cableinet.co.uk


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Singapore
  •           Rainbow HeartKids
  •           c/o Club Rainbow Singapore
  • P.O. Box 447
    Orchard Road Post Office
    Singapore 912315
    Contact: Helen Ng
    e-mail: helenng50@gmail.com


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    Switzerland
    Elternvereinigung fuer das herzrkanke Kind
    email: evhk@paus.ch

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    U.K.
    CRY - Cardiac Risk in the Young
              Unit 7, Epsom Downs Metro Centre
              Waterfield, Tadworth, Surrey, KT20 5LR 
    Phone: 01737 363 222

    Down's Heart Group
    PO Box 4260
              Dunstable LU6 2ZT
    Phone: 0844 288 4800
    e-mail: info@dhg.org.uk
     
    Grown Up Congenital Heart
    12 Rectory Road
    Stanford-le-hope
    Essex
    SS17 0DL
    Contact: Mavis Moore
    e-mail: Mavis@guch.demon.co.uk

    Children's Heart Federation
    52-54 Kennington Oval
    London SE11 5SW
    Helpline: 0 808 808 5000
    E-mail: chf@dircon.co.uk

    Heartline
    Rossmore House
    26 Park Street
    Camberley, Surrey
    GU15 3PL
    UK
    E-mail: heartline@easynet.co.uk

    The 22q11 Group
    Contact: Julie
    Phone: 44 1908 320 852

     

     

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