C.H.I.N. Affiliated
Support Groups |
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United States
Arizona
HeartLight
University Medical Center
1501 N Campbell Avenue
PO Box 245073
Tucson, Arizona 85724
Contact: Katie Desiato
Phone: 520-250-6252
Heart 2 Heart
Phoenix Children's Hospital
Meeting held the 3rd Monday of every month
Phone: 602-996-6121
email: azheart2heart@cox.net
Connecticut
Congenital
Heart Defect Awareness, Inc
Florida
Angel's Pediatric Heart House
151 N Nob Hill Rd. Suite 139
Plantation, FL 33324
Contact: Sonia
Perez
Phone: 954-318-2020
Illinois
T.O.U.C.H.
515 NE Glen Oak Ave. Suite 202
Peoria, IL 61603
Contact:
Gail
Eaton
Phone: 309-655-2650
Michigan
Families
at Heart
100 MIchigan Ave. NE; MC 117
Grand Rapids, MI 49503
Contact: Gwen
Fosse
Phone: 616-391-8707
New York
Children's
Heart Fund
One Gustave Levy Place
PO Box 1201
New York, NY 10029
Contact:
Suzanne Zimmerer
Phone: 212-241-8668
Ohio
C.H.I.N., Ohio
Contact: AnneMarie Sarvis
Email:
anne@tchin.org
Phone: 330-665-1113
Healing
Hearts
Akron, OH
Contact: Katie Fleming
Email:
flemings249@aol.com
Phone: 330-543-4325
Pennsylvania
C.H.I.N., Philadelphia
Includes Philly and surrounding
counties, Central through
South New Jersey and Delaware
Contact:
Lisa Rodebaugh
Tennessee
Saving
Little Hearts
Knoxville, TN
Email:
info@savinglittlehearts.com
Texas
Heart to Heart
P.O. Box 595
Colleyville, TX 76034-0595
Phone: 888-475-2787
Contact: Sally Pearson
Utah
Hearts
of Hope Foundation of Utah
Phone: 801-495-1803
Contact: Laura
Kelter
Australia
Heart Kids Victoria Inc.
PO Box 5108
Clayton
VIC 3168
Contact:
heartkids@hotkey.net.au
Canada
Children's Heart Network
#4 3821A Cedar Hill Cross Road
Victoria British Columbia
CANADA V8P 2M6
Phone: 250-598-2542
Program & Family Resource
Coordinator: Colleen Corder
e-mail:
chn@childrensheartnetwork.org
France
L'Association Nationale des Cardiaques Congenitaux
email:
contact@ancc.asso.fr
Germany
IDHK - Interessengemeinschaft Das herzkranke
Kind
Steinenhausenstrasse 37
D 70193 Stuttgart
Telephone: 07 11 / 6 36 60 19
email:
roennebeck@idhk.de
United States
- Arizona
-
HeartLight
University Medical Center
1501 N Campbell Avenue
PO Box 245073
Tucson, Arizona 85724
Contact: Katie Desiato
Phone: 520-250-6252 |
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California
- Heart 2 Heart
Children's Hospital Los Angeles
- Meetings held on the first Tuesday of every month 6:00p.m.-7:30p.m
- Conference Room D (Ground floor)
- Contact: Scott Ferguson
Phone: (323) 669-2483
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- California Heart
Connection
PO Box 50063
Irvine, CA 92619
- Contact: Debbie Hilton-Kamm
Phone: 949-653-6421
CHIFund
PO Box 28757
San Diego, CA
Contact: Wendy Robinson
- Colorado
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Cardiac
Kids/Association of Volunteers
- 1056 East 19th Avenue
- Box 465
- Denver, CO 80218-1088
- Phone: 303-861-6607
- e-mail:CardiacKids@tchden.org
- Connecticut
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- Little Hearts, Inc.
- Contact: Lenore Cameron
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- Delaware
-
C.H.I.N., Philadelphia
Includes Philly and surrounding
counties, Central through
South New Jersey and Delaware
Contact: Lisa Rodebaugh |
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- Florida
-
Angel's Pediatric Heart House
151 N Nob Hill Rd. Suite 139
Plantation, FL 33324 FL 33355
Contact: Sonia Perez
Phone: 954-318-2020 |
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- Pediatric Heart Foundation
- PO Box 540354
- Lake Worth, FL 33454
- Contact: Laurie Bernat
- Phone: 561-738-4554
- e-mail:phfheart@aol.com
Little
Hearts of So. Florida
Contact: Sabrina
Lewis
Broken Hearts of
the Big Bend
Tallahassee,
Florida
Contact: Karen
Thurston Chavez
Phone: (850)
443-2984
E-mail: broken_hearts@comcast.net
- Georgia
- Heart to Heart
- 6322 Millbranch Road
- Columbus, GA 31907
- Phone: 706-563-3112
Kids at Heart - Atlanta, Georgia
Contact: Megan Ramsey
- Phone: 404.785.1822
- Contact: megan.ramsey@choa.org:
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- Hawaii
- Kardiac Kids
- c/o Kapi'olani Medical Center for Women and Children
- 1319 Punahou Street
- Honolulu, HI 96826
- 808-983-8166
- Contact: Lisa Rohr, RN
- Illinois
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- The Heart of the Matter
- 20128 Westport Drive
- Frankfort, IL 60423
- Phone: 815-469-9146
- e-mail: CT875@aol.com
- Indiana
- Our Hearts
- 1738 N Shortridge Rd
- Indianapolis In 46219
- Contact: Susie DeLoach
- (317)322-1017
- E-mail: ourhearts@iquest.net
- Iowa
- Heart Friends
UIHC Pediatric Cardiology
Iowa City, IA
Contact: Trudy Pierick
Email: trudy-pierick@uiowa.edu
Heart-to-Heart
Iowa
111 W Dallas
Linden, IA 50146
Contact: Lori Means
Phone: 641-744-2212
- Kansas
Heartland Hearts
- 3519 W. 11th
St. N
- Wichita, KS
- Contact: Steph Crocker
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- Maine
Stronghearts
- PO Box 177
- Perry, ME 04667
- Phone: 207-853-2774
- Email:
stronghearts@ptc-me.net
Precious Hearts
22 Bramhall St.
Portland, ME 04102
Contact: Pam Schlichting,
BSN, RN
Phone: (207)662-2273
- Massachusetts
- Adults with Congenital Heart Disease Support Group
Meets first Monday of each month
- Children's Hospital Medical Center
- Contact: Dr. Jonas Bromberg
- Phone: 617-332-6028
- e-mail: jonas_bromberg@hms.harvard.edu
Heart
to Heart Fund
New England Medical Center
Pediatric Cardiology
750 Washington Street, #313
Boston, MA 02111
Phone: (617)636-8101
Email:
info@heart2heartfund.org
Friends With Heart
Contact: Dawn King
Phone: (508)842-1636
Email:
dawnking@townisp.com
Michigan
Families
at Heart
Helen
DeVos Children's Hospital MC # 117
100 Michigan NE
Grand Rapids, MI 49503
Contact: Gwen Fosse
Phone: 616-391-1369 |
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- Hearts of Hope
Contact: Jill Teats
Email: jill@heartsofhopemi.org
- Minnesota
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Parents For Heart of Minnesota, Inc.
Attention: 32-P190
2525 Chicago Avenue South
Minneapolis, Minneosta 55404
Contact: Celeste Gebauer
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- Missouri
Heart to Heart - St. Louis
St. Louis Children's Hospital
Social Service Department
One Children's Place
St. Louis, MO 63110
Contact: Elaine Wear and Nan Winters
Phone: 314-577-5600
- Nebraska
- The Midwest Heart Connection
PO Box 45618
- Omaha, NE 68145
- Marci Smith
e-mail: ed@midwestheartconnection.com
Phone: 308-389-3143
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- Nevada
- Children's Heart Foundation
3006 S. Maryland Parkway, Suite 690
Las Vegas, NV 89109
- Contact: Lyn Acebo
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- New Hampshire
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Families with Heart
824 High Street
Candia, NH 03034
Contact: Laura Briggs
Phone: 603-483-3025 |
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Little Hearts of New Hampshire
Contact: Julie
Baldy
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- New Jersey
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C.H.I.N., Philadelphia
Includes Philly and surrounding
counties, Central through
South New Jersey and Delaware
Contact: Lisa Rodebaugh |
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- Young Hearts
- 791 Frederick Court
- Wyckoff, NJ 07481
- Contact: Barbara McFadden
- Phone: 201-848-9608
Little Hearts of New Jersey
Contact: Pam Kane
Hope with Heart
PO Box 618
Hewitt, NJ 07421
Phone: 973-728-3854
Email:
mail@hopewithheart.com
- New York
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- Circle of Hearts
P.O.Box 662
Kenmore, N.Y. 14217-0662
Contact: info@cohearts.org
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- Big Hearts for Little Hearts
- 34 Sintsink Drive West
- Port Washington, NY 11050
- Contact : Ruth Maszrik
- Phone: 516-883-4080
Helping Hearts, Inc.
601 Elmwood Avenue
P.O. Box 631
Rochester, NY 14642
Phone: (716) 275-6108
Email:
info@helpinghearts.org
Hope for Hearts, Inc.
Children's Medical Center
Stony Brook University Hospital
Stony Brook, NY 11790-8111
Contact : Rose Weiss
Phone: 631-499-4476
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- Mend-A-Heart
Support Group
New York, NY
Cardiac Kids
PO Box 154
Fishkill, NY 12524-0154
Contact: Cindy-Jean Dennis
Phone: 845-896-7321
Little Hearts of Long Island
Contact: Lisa June
Little Hearts of Northern NY
Contact: Rita Pardee
North Carolina
Carolina Parent Network
Contact: Maggie Morris
Phone:
919.966.3381
Ohio
Hopeful Hearts for Children
Cincinnati, OH
Contact: Julie Balzano
Email: jbalzano@fuse.net
Pennsylvania
C.H.I.N., Philladelphia
Includes Philly and surrounding
counties, Central through
South New Jersey and Delaware
Contact: Lisa Rodebaugh |
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Heart to Heart
Children's Hospital of Pittsburgh, Oakland Campus
Meetings on the 2nd Thursday of every month
Phone: 412-692-5546
Little Hearts of North Central Pennsylvania
Contact: Susan Myers
Fontan Friends
482 Reginald Lane
Collegeville, PA 19426
Contact: Barbara Lewis
Phone: 610-831-9878
Little Hearts of Southeastern PA
Contact: Calista Cleary
Hershey Hearts
PO Box 163
Hershey, Pennsylvania 17033-0163
Email Contact: info@hersheyhearts.org
Rhode Island
The
Rhode Island Association for Cardiac Children
Phone: 401-353-3966
Contact:
riacc@cardiacchildren.org
South Dakota
Thumpers
124 Spearfish Mtn. Ct
Spearfish, SD 57783
Contact: Dixie Varns
Tennessee
Texas
Milagros (Miracles)
Children's Hospital of Austin
601 E. 15th St.
Austin, TX 78701
Contact: Kina Howard, RN, BSN
Phone: 512-324-8028
It's
My Heart, Inc.
Houston, TX
Contact: Corrie Stassen
Phone: 281-578-7343
- Utah
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- Vermont
- Heart to Heart
60 Maple Ridge Road
Underhill, VT 05489
Contact : Julianne Nickerson
Phone: 802-899-3798
e-mail:
LamaDaiz@aol.com
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- Virginia
- Precious Hearts
144 Locust Ave.
- Winchester, VA 22601
- Phone: 540- 678-0654
- e-mail: HurlbutK@aol.com
Tender
Hearts
Inova Heart Center
Phone: 703-204-6563
HUGSS
Children's Hospital of The King's Daughters
Norfolk, VA
Contact: Gail Cervarich, LCSW
Phone: 757.668.7646
T-HUGGS
Support for Teens with CHD
Children's Hospital of The King's Daughters
Norfolk, VA
Contact: Gail S. Cervarich, LCSW
- Washington
- Heart to Heart CHD
Support Group
2700 Northup Way
Bellevue WA 98004
Contact:
Josephine Young, MD
- Phone: 425-827-4600
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- Wisconsin
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Left Hearts
250 N. Sixth Street
DePere,WI. 54115
Contact: Dyan Larmay
Phone: 920-403-1154
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Kids With Heart
1578 Careful Drive
Green Bay, WI 54304
Phone/Fax - 920-498-0058
- Australia
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Heart Kids Victoria Inc.
C/o Cardiology Department
The Royal Children’s Hospital
Flemington Rd
PARKVILLE VIC 3052
Contact: heartkids@heartkids.org.au
Phone: 03 9513 9030 |
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- Heart Kids of
SA Inc.
- 155 Hutt Street, Adelaide, 5000
- e-mail: heartkids@geocities.com
- Heart Kids ACT, Inc.
- PO Box 1041
Woden, ACT
Australia 2606
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- Heart Kids QLD
- P.O. Box 3017
- Norman Park,
- Brisbane, Qld. 4170
Contact: Lyn Chappell
- Heart Kids WA
- PO Box 1554 West Perth
- Telephone: (08) 9340 7996
- e-mail: heartkidswa@heartkidswa.org.au
Heartkids
NSW, Inc
26/10J Hilltop Rd
Merrylands NSW 2160
Phone: (02) 9294 0800
email:
mail@heartkids.org.au
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- SADS Australia
Information and Support about the Genetic Heart Disorder
called the Long QT Syndrome
Contact: Julie Foley
- Brazil
- Heart Circle of Pernambuco
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Email: ssmattos@cardiol.br
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- Belgium
- Nos Enfants Cardiaques
email:
nos.enfants.cardiaques@skynet.be
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- Ons Hartekind
email: pub00323@innet.be
- Canada
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- CHAIN
- 1688 Boul Lorrain Gatineau
- Quebec, Canada J8R-3G1
- Phone: 819-643-9663
- Children's Heart Society
- Box 52088, Garneau Postal Outlet
- Edmonton, Alberta
- T6G 2T5
- Phone: 403-454-7665
- e-mail: ckstump@telus.net
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The Heart
Of A Child
Support for parents with children who have CHD
1070 Windsor Ave.
Windsor Ontario
N9A 1K4
Phone: (519) 971-0760
Circle
of Hearts
Winnipeg, CA
Contact: circle_of_hearts_vchc@hotmail.com
Canadian Congenital
Heart Alliance
Contact:
info@cchaonline.ca
kidPACES
Parental Advocates for Cardiac Education and Support for Kids
The Hospital for Sick Children
555 University Avenue
Toronto, Ontario
Canada
Contact: kid.paces@sickkids.ca
Heart Beats Children’s
Society of Calgary
Calgary, Alberta
Contact: Patty Wiebe
China
Children's
Heart Foundation: Hong Kong
E-mail: chf@childheart.org.hk
France
Heart
and Coeur
France
Germany
Ireland
Heart Children
The Carmichael Centre
North Brunswick Street
Dublin 7, Ireland
Email: heartchildren@eircom.net
Italy
Associazione Bambino Cardiopatico
(ABC Parma)
Piazzale Matteotti, 9
43100 Parma
Email: info@abcparma.it
Netherlands
- Hartenark
- Prof. Bronkhorstlaan 2
- 3723 MB BILTHOVEN
- The Netherlands
- 31-30-2290244
- Contact : Karin Bus
- New Zealand
- Heart Children New
Zealand, Inc.
- Contact: heartchildrennz@xtra.co.nz
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- Adults with Congenital
Heart Conditions
Contact : Shelly
- Scotland
- Bravehearts
- 26 Fernbank
- Ladywell, Livingston
- Scotland
- EH54 6DT
- e-mail: braveheart@cableinet.co.uk
- Singapore
Rainbow HeartKids
c/o Club Rainbow
Singapore
P.O. Box 447
Orchard Road Post Office
Singapore 912315
Contact: Helen Ng
e-mail: helenng@singnet.com.sg
- Switzerland
- Elternvereinigung fuer das herzrkanke Kind
email: evhk@paus.ch
- U.K.
- CRY - Cardiac Risk in the
Young
- Unit 7, Epsom Downs Metro
Centre
- Waterfield, Tadworth, Surrey, KT20 5LR
- Phone: 01737 363 222
- Down's Heart Group
- PO Box 4260
- Dunstable LU6 2ZT
- Phone: 0845 166 8061
- e-mail: info@dhg.org.uk
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- Grown Up Congenital Heart
- 12 Rectory Road
- Stanford-le-hope
- Essex
- SS17 0DL
- Contact: Mavis Moore
- e-mail: Mavis@guch.demon.co.uk
Children's Heart Federation
52-54 Kennington Oval
London SE11 5SW
Helpline: 0 808 808 5000
E-mail: chf@dircon.co.uk
Heartline
Rossmore House
26 Park Street
Camberley, Surrey
GU15 3PL
UK
E-mail: heartline@easynet.co.uk
The 22q11 Group
Contact: Julie
Phone: 44 1908 320 852
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